Living A Life With Hemophilia B

1046 words - 5 pages

Joey is a very active nine-year old boy. His favorite things are playing outside and math. You would never know by looking at him but Joey is not your normal nine-year. He runs, he climbs trees, he wrestles with his friends but he has Hemophilia B. He plays hard just like any other boy but unlike other children, when they would need to put ice or a band-aid on an injury, Joey has to go to the emergency room to receive medication through an IV.

Hemophilia is a genetic bleeding disorder. When someone has Hemophilia B, their bodies have a defective or missing protein called factor IX. (The Coalition for Hemophilia B, 1) Hemophilia B is only found in approximately 1 in 25,000 male births. (National Hemophilia Foundation. Hemophilia B Assessed July 16, 2009, 2) Joey has what is considered moderate hemophilia.

The first reaction most people have when they find out Joey has hemophilia is to think of how it limits him. Joey was raised to think of what he can do, not what he cannot do. He has learned to weigh the risks involved with every activity he does. Joey normally decides the fun out ways the risks and he has paid the consequences for that in the past. However, he does not let that stop him from making the same choice again the next time. He has been known to say while laying in the hospital bed "I am here now but I sure was having fun before I got hurt".

Due to Joey's condition he has become a very kind and considerate child. He is careful to not hurt other children and is very upset when others are hurt. He has a lot of friends and loves to play ball and tag with them. At recess, you can normally find him playing kick ball. Kick ball remains his favorite recess game even though he was hit in the head by the ball several months ago. Joey ended up having an internal brain bleed and concussion from that incident but it has not slowed him down. Joey does not let his hemophilia define who he is. He deals with needing factor when accidents happen but he does not let it hinder him. Most Hemophiliacs will be diagnosed shortly after birth.

Joey was three years old when he was finally diagnosed with Hemophilia. His Hematologists have since stated, they are not sure how he survived as long as he did without diagnoses and treatment. When Joey was 3 he fell from a pool slide and developed a hematoma or bump on his forehead. He received several CT scans but all the doctors said he was fine and it would eventually go away. As time went on, the knot on Joeys forehead continued to grow larger. Two months went by before the doctors decided something was wrong. They ran test and found that he has Hemophilia B. They realized he had been continually bleeding internally from his injury which was causing the knot to continue growing. They immediately treated him with replacement...

Find Another Essay On Living A Life With Hemophilia B

Living a Distracted Life with Attention Deficit Disorder

1320 words - 6 pages Deficit Disorder." 123HelpMe.com. 14 Apr 2014 http://www.123HelpMe.com/view.asp?id=54273 "A Focus On Adults: Living With Chronic ADHD." Talk of the Nation 2 Apr. 2013. Opposing Viewpoints in Context. Web. 14 Apr. 2014. Document URL http://ic.galegroup.com/ic/ovic/AudioDetailsPage/AudioDetailsWindow?failOverType=&query=&prodId=OVIC&windowstate=normal&contentModules=&mode=view&displayGroupName=Audio&limiter=&currPage=&disableHighlighting=true&displayGroups=&sortBy=&search_within_results=&p=OVIC&action=e&catId=&activityType=&scanId=&documentId=GALE%7CA325711413&source=Bookmark&u=pemb33391&jsid=49fd4de20e93ad502ac77eeae7885e20

Life of a white girl living with colored people

807 words - 4 pages . Through the acts of discrimination, Racism and stereotype, Lily starts to understand and unfold her life. Lily is a girl who has been living with a secret for many years. One of the reasons she ran away was to find out if what T.Ray had been telling her, her whole life was true or not. During her journey to finding the truth, she was faced with many obstacles. One of those obstacles was people discriminating towards Rosaleen, Zach, the three

A Quality life: Living With Congestive Heart Failure

1070 words - 5 pages A Quality life: Living With Congestive Heart Failure In heart failure, the heart is unable to pump effectively resulting in inadequate cardiac output to meet body’s demands. When this happens, the weakened heart is unable to maintain sufficient blood flow to the kidneys. With reduced blood flow, the kidneys are unable to filter out fluid to the urine and the resulting fluid builds up into the liver, legs, and lungs causing congestion. This

Living a Life With or Without Hope: Amazing Grace

723 words - 3 pages Imagine attending a low class segregated school, no matter how smart you may be, you are always categorized. Picture yourself surrounded in a city that’s filled with crimes and poverty, being judge constantly because of your residency. In the book Amazing Grace, Jonathan Kozol interviews the children of Mott Haven and other lower class cities in the state of New York. Some children in the community are very well educated; however, some of them

Living a deliberate life

1079 words - 5 pages Living a Deliberate Life In the twenty-first century society is living a life where individuals are often too busy to reflect on life, and its true meaning. People are often submerged in unimportant things. What is living deliberately? If, Henry David Thoreau (1817-1862), transcendentalist essayist, were alive today, and he asked me if I am living like he suggests, I would have to answer, no. I think it is nearly impossible with all these new

Living a Green Life

747 words - 3 pages The moment I chose to major in Environmental Engineering, a thought flew to the front of my mind: “I should probably start living more green life if I want to study this subject.” Since that moment two years ago, I have attempted to move my life towards a more environmentally friendly alternative. If there is one thing this shift has taught me, it is that living green is not easy. One of the first things I had to consider was my hot water

Living a Jublant Life

806 words - 4 pages I believe in loving myself for who I am, as well as keeping an uncluttered mind to the world and all it has to offer. Enjoying the little things in life, never giving up on dreams and hopes, and giving everything 100% percent are objectives I tend to live by day to day. Love, happiness, and knowledge are all crucial to living a jubilant life. Knowledge is power. With knowledge, you indeed have power over things. How you apply knowledge to life

Characteristics of, and Life Living With Albinism

1581 words - 7 pages Living with a genetic disorder can be a frustrating endeavor at the best of times; physically standing out in a society that already has misconceptions and stereotypes about how and who a person should be, doesn’t exactly help, though, it’s conditions like these that people with albinism go through every day. Albinism is a genetic disorder that results in little to no pigment, or melanin, in the hair, skin, or eyes of an individual. The lack

Living in a Rural Area: Relating With Rebecca Skloot's The Immortal Life of Henrietta Lacks

1549 words - 6 pages time to mow again. If I wasn't doing that, I was with my dad in his truck, driving on miles and miles of gravel logging roads to find wood to cut. We would be up in the mountains from sunup to sundown chopping wood, I hated it! I did all this for a meager $3 a week allowance. I also had to chop blackberry bushes, weed the gardens, and do other hard labor stuff, that every kid would probably hate. Besides all my personal downfalls of living

Living a Lie in The Secret Life of Walter Mitty and The Lady With The Dog

895 words - 4 pages has come to be a part of these character's lives, and what defense mechanisms the characters came up with in order to combat it. In Chekov's "The Lady with the Dog", the main character whose name is Dmitry Dmitrich Gurov is extremely unhappy with the way his life has turned out so far . He was forced to marry a woman whom he did not love. Over time he began to be unfaithful to his wife, whom he described as being a tall woman with dark

Living My Life: A Perspective on Suicide in Connection with Susana Kaysen's Book, "Girl, Interrupted"

618 words - 2 pages suffering. Kaysen, diagnosed with bipolar disorder, used her experiences to creatively inform and educate the reader on the tragedies that occur as a result of the numerous "faces" of depression. Kaysen lived at McLean Institute, a mental institution, which she called home for nearly two years of her life. She was struck with frequent thoughts of suicide and was unable to rid her mind of them. Often unable to escape obsessive thoughts on suicide, I

Similar Essays

Living With Hemophilia B Essay

1559 words - 6 pages has proven in many ways that he has heard his mother's message loud and clear. Joey has become very strong, independent, and inspiring. He is a prime example of not just surviving life, but living it! I am very proud of the wonderful man Joey is becoming. I am so lucky to be able to say I am this amazing boys mother. Work Cited Coaltition for Hemohilia B http://coalitionforhemophiliab.org/vision/ National Hemophilia Foundation, Hemophilia B Assessed July 16, 2009 Tom Andrews, Codeine Diary: A Memoir of My Life with Hemophilia

Living Life With Fibromyalgia Essay

1516 words - 7 pages brought back to the reality I live in. No more wading through memories of past, instead I will make tidal waves; replacing this ill-thought mindfulness with new ones that will last for all eternity. As a family we will continue to live as though nothing has changed. Truthfully that is the only segment of my life that hasn’t changed; my husband and my children are still with me. That is what truly is important and shall remain important. Then

Make A Life Worth Living With Another Soul

1036 words - 5 pages The world we live in can be so abrasive, cruel, and merciful. Shouldn’t anyone be allowed to find that one person to make life worth living? Every human needs love and care to continue to grow, feel safe, comfortable, and sound. A life worth living without living or sharing it with someone else. The immigrants felt that they did not have the quality of the life worth living, they decided that life is indeed worth living, therefore the

Living A Distracted Life With Attention Deficit Disorder

1823 words - 7 pages Attention Deficit Disorder is a disability affecting 1.21% of Americans (CDC Fast Stats). For a percentage that seems so small, the effects of living a life with ADD are significant. People with ADD struggle in school or in everyday situations, but they can learn ways to manage this disability. During childhood unknowingly struggling with ADD made things more complicated throughout school and life, and it went overlooked and undiagnosed until
German Third Reich (6711 | Goodbye Midori-chan | Avenged Sevenfold Synyster Gates Solo Live Rock Am Ring